ABOUT US

Hi my name’s Anna Morrow!! When I was 9 I was diagnosed with a rare disease called Friedreich’s Ataxia. The main symptoms are coordination loss, are heart condition, scoliosis and many others which may lead to people using mobility aids. Ever since I was young I have loved sports, but I have lost the ability to play the sports I love. There is equipment that can help people with disabilities to do the things they love such as skiing, biking, paddle boarding and many others. I am fortunate enough to be able to get this adaptive equipment but, many are not. Insurance companies will not pay for this as it is considered “extra” and “unneeded,” and others don’t have insurance at all, so their finances are even more strained. I want other children with this disease to be able to experience the freedom that this equipment provides. I created a foundation that will provide funds for people who are unable to afford the equipment themselves. Through the foundation there is a website for people to contact us and apply for different equipment displayed on the website. On the website I would display younger people using mobility aids because as a young, disabled person I do not see myself portrayed on websites that sell this equipment. As a young person I might shy away from the product because of the stereotypes built by the image. It is important that people with FA are able to have freedom without the stereotype of “you’re too young to be disabled.” I have learned how important adaptive equipment can be and how many people are in need of it. My goal for this project is to create a website and foundation where people with FA can get the funding they need for mobility aids and adaptive equipment.